Rome, November 21 (Adnkronos Salute) – “The Odv Myasthenia Association is currently focused on Triveneto and wants to welcome patients, especially at the first diagnosis. At that time they need a reference point to understand what to do and how to behave with myasthenia”. Thus Marco Rettore, president of the Myasthenia Association Am – Odv, spoke at the event ‘Protection of patients with rare diseases’, where people affected by myasthenia gravis were discussed, organized in Rome and promoted by the Omar – Rare Diseases Observatory, with an unconditional contribution from Ucb Pharma.
“We also organize therapeutic training courses aimed at patients, caregivers, doctors and nurses. This is a mobile route and with specialists we answer questions that come from patients,” he concluded.
